Privacy Policy

Privacy Notice

Our contact details

Intractable Epilepsy is a charity registered under charity number 1199192 and a charitable company limited by guarantee under company number 13019024

LONGTON HALL FARM, CHAPEL LANE, LONGTON, PRESTON, PR4 5EB

Email: Info@intractable.org,uk

Website: https://intractable.org.uk/        

The type of personal information we collect when you apply for the Programme

We currently collect and process the following information for the following reasons:

  • Personal identifiers: Your full name, in case the applicant is not also the patient, the patient’s name, contact details, such as postal address and e-mail address and your telephone number, should you choose to disclose it to us.

  • We process your dispensing pharmacy’s contact details and payment information to settle your account with the pharmacy.

  • We also process the name of your Clinician, their contact details and GMC number, the diagnosis that the Patient is suffering from intractable epilepsy and the date of your first prescription to secure that you qualify for our Programme and in order to demonstrate charitable use of funds to the Charity board. Although we can only process this data with the Patient’s free and voluntary consent, Patients will not be able to participate in the Programme without your consent.

How we get the personal information and why we have it

We store and process only the personal data that we need to assess the Patient’s eligibility for and to operate the Programme. All personal data is received through the Applicant or directly through the Patient, through your Clinician and dispensing pharmacy. We do not use any other data sources and will not use the information for any other purposes.

Most of the personal information we process is provided to us directly by the Patient in order to process and decide if your application meets our requirements for funding medicinal grade cannabis.

We also receive personal information indirectly, from the Patient’s physician. We receive this information based on the Patient’s consent. We will use this information only to evaluate the Patient’s fitness for the Programme.

Under the UK General Data Protection Regulation (UK GDPR), the lawful bases we rely on for processing this information are:

  1. The Patient’s consent. The Patient is able to remove your consent at any time. We can be contacted under Info@intractable.org.uk. We process the name of your Clinician and their confirmation only based on your consent.

  2. We have a contractual obligation towards the Patient, or are taking steps towards a contractual obligation through the application to our Programme.

How we store personal information

All personal information is securely stored.

We keep all information described above for six years. We will then dispose your information securely by automated means.

 

Who do we share data with?

Generally, we do not share your data with any third parties.

The type of personal information we collect when you visit our website

We currently collect and process the following information for the following reasons:

  • Personal identifiers: Contact information, such as your name, e-mail address, and telephone number; and

  • Other personal information you chose to share with us, when you contact us.

Automated Data Collection

 

We use Cookies when you visit our website

Cookies are a standard feature of websites that allow us to store small amounts of data on your computer about your visit to our website. We use cookies to perform many different functions. For example, cookies help us to operate the site, e.g. by remembering your preferences, or improve your experience with our site.

We also use technologies similar to cookies, such as Flash Local Shared Objects (also known as Flash cookies) and pixel tags (also known as web beacons and clear GIFs), for similar purposes.

The information we obtain in this manner may include your:

  • Device IP address,

  • Domain name,

  • Identifiers associated with your devices,

  • Device and operating system type and characteristics,

  • Web browser characteristics.

 

Below, you can find the different types of cookies and similar technologies used on the Site.

Strictly Necessary Cookies

These cookies are required for the Website to operate. They are used to ensure the safety, security, and integrity of the Site, as well as to enable users to move around the Site and use its features. These cookies are often session-specific, which means they expire after your visit to the Site has ended. These are processed in our legitimate interest.

What Cookies does our website use?

Additionally, you can stop certain types of cookies from being downloaded on your computer by selecting the appropriate settings on your web browser. Most web browsers will tell you how to stop accepting new browser cookies, how to be notified when you receive a new browser cookie, and how to disable existing cookies. You can find out how to do this for your particular browser by clicking “help” on your browser’s menu or by visiting http://www.allaboutcookies.org. If you choose to delete or disable cookies and similar technologies, your experience on the Site may be diminished, and some features may not work as intended.

 

Newsletter

If you have signed up for our newsletter, we process your name and e-mail-address to keep you informed on relevant news and activities around our charity. This processing is based on your consent, that can be withdrawn at any time.

How we get the personal information and why we have it

Information is received directly from you, if you chose to contact us or provided to use through your computer.

We use the information to answer your contact request and to operate this website.

Under the UK General Data Protection Regulation (UK GDPR), the lawful bases we rely on for processing this information are:

  1. We have a contractual obligation towards you, or you are taking steps towards a contractual obligation with us

  2. Data Processing is in our legitimate interest, e.g. to operate the website or to answer your request if said request is not related to a contract.

  3. You have consented to the processing. You are free to remove your consent at any time with effect for the future.

 

How we store personal information

All personal information is securely stored and deleted as soon as possible.

The criteria used to determine our retention periods include the length of time we have an ongoing relationship with you, e.g. when answering your requests and whether there is a legal obligation to which we are subject

Who do we share data with?

Generally, we do not share your data with any third parties.

Our service providers who perform services on our behalf, such as hosting this Site. We do not authorise our service providers to use or disclose the information except as necessary to perform services on our behalf or comply with legal requirements.

General Data protection rights

Under data protection law, all data subjects (e.g. Patients) have multiple rights including:

Right of access - The right to ask us for copies of your personal information.

Right to rectification - The right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.

Right to erasure - The right to ask us to erase your personal information in certain circumstances.

Right to restriction of processing - The right to ask us to restrict the processing of your personal information in certain circumstances.

Right to object to processing - The the right to object to the processing of your personal information in certain circumstances.

Right to data portability - The right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.

You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you.

Please contact us at info@intractable.org.uk if you wish to make a request.

How to complain

If you have any concerns about our use of your personal information, you can make a complaint to us at info@intractable.org.uk.

You can also complain to the ICO if you are unhappy with how we have used your data.

The ICO’s address:           

Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

Cheshire

SK9 5AF

 

Helpline number: 0303 123 1113

ICO website: https://www.ico.org.uk